Dani’s chiropractor appointment went well.  Dani is starting to cough and sneeze and sounds very junky at times.  Dr Marsh noticed it as well.  We will wait and see what this turns into, hopefully, it is just the sniffles, but knowing Dani, it could turn to more than that really fast.

I know I posted before regarding a little guy named Alec.  Please say some extra prayers because he just entered in Hospice care.  http://www.caringbridge.org/sd/alec/

She hums…

Dani has a chiropractor appointment this afternoon.  It feels different not dragging Dani to appointments and having less therapies.  I wish I coud say it was extra time for ourselves but it’s not the case.  We stepped up Dani’s program at home where every half hour we do sensory, tactitle, and vision stimulation then she gets put back on her tummy.  She seemed to tolerate this schedule very well.  Dani is starting to hum again.  We really haven’t heard much from her since her burr hole surgery last August.  When she does this, the girls are good for laying next to her and copying her hums back to her.  Last week, I heard a weird noise from her when I was laying by her.  I noticed she was sucking in her sleep.  I couldn’t even tell you the last time I saw her do that!  Everyday Dani amazes us and it is exciting to see what she will start to do next…

Dani’s eyes

Dani had a good morning so far.  She really did an awesome job of using her eyes.  She was looking right at me as I was doing her morning cares.  Then Beans bounced in to say “good morning” and Dani looked over in the direction where Beans was.  I had Brianna get closer to her and talk to Dani and Dani looked at her!  And when Kaylee came in the room, her eyebrows moved, she knew Kaylee was in the room, but couldn’t see her.  Kaylee got down to her level so Dani could see her.  When I held up 5 shapes for Dani to look at, she was looking at them!  I think I wore her out by doing some feels (hard & soft) because she went back to the blank stare of hers.  Right now she is doing her tummy time.  She really doesn’t mind doing tummy time.  Also, I forgot to mention her chiropractor appointment Dr Marsh has noticed more muscle tone in her lower back!  But he can tell she prefers to be on one side of the tummy more than the other.  We have also noticed when she has her clonis spells her arms usually flop with the shaking, but she has more control of her arms.  She doesn’t let them flop around.  We are getting there little girl, soon we will get you “out” of your body!

Well, the poop master struck again.  Hehehe, this time she was doing tummy time on Daddy’s belly!!!  I got to clean Dani up while Dan cleaned off his shirt.  We are going to tweak her Myralax over the next couple of days, if that doesn’t help, we might have to bring her in.  It seems every 6-9 months she has to change from Myralax to Lactoluse.  We just won’t plan any shopping trips anytime soon!

I am still working on updating her website.  Hopefully, by the weekend everything will be up and running again!

Ok, not sure what is going on with Dani‘s Journal, but I have seemed to lose access to Dani’s Journal. I will keep plugging away at it because that is a ton of information that may be lost. As to access to photos and gadgets, yeah, still working on that. I did an update to her website and seemed to lose that along the way.